Hampton Roads Special Education Parent Support Group

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It's hard to stay strong

Posted by bosunpenny on December 27, 2009 at 7:47 PM Comments comments (0)

One is to assume that you will have normal kids that grow up and go off to college, however things change and life happens. I have a 16 year old son that has been living with me full time for the past 5 years. Once custody was granted to me he immediately showed signs of behavior problems. After a few months of ISS (In School Suspensions) and after a week stay at the mental ward the school evaluated him and labeled him with ED. During the past 5 years that has been a lot of ups and downs and now he is at the point where he doesnt want to go to school, instead he wants to get a GED, which I don't have a problem with but I would much rather him graduate the traditional way. Im a single parent and most days its hard to stay strong and I want to do is take a deep breath and count to 10.. It's hard to find the right answer on what exactly to do..Do I put him in military school, do I support him getting his GED..My feeling is that he needs something to help him with his lack of self confidence.

Has anyone heard of the Rivermont School?

 

Thanks for reading

 

Penny

Special Education and Disability News

Posted by anonymous on June 2, 2009 at 4:33 PM Comments comments (0)

JoAnn’s Corner JoAnn@disabilitydeception.com

 

Special Education person: Your child needs to be evaluated now because he is having behavioral problems. We have the right to evaluate your child whenever we want to, and we can do whatever tests we want to!”

All of these are untrue! A school district can ask to evaluate your child, but a parent still must sign a consent form—therefore give permission for the testing. A parent can refuse to give permission for school testing—especially when the parent does not understand why the testing is being done. In this parents case I believe that the school district wanted to test the child, so that they could change his identifying category (some people call label—under which a child receives special education services) to emotionally/behaviorally disordered!

IDEA states that parents must give informed consent for testing of their child. I have interpreted informed consent to be that the parent has the right to give input on the tests given to their child. I also insist that the specific tests be written on the testing form, before the parent signs the form! Why do I insist on this? Because this way the school district cannot give the child tests that have not been discussed, or tests that the parent does not agree with. In this child’s case he was given a BASC-2 test (Behavior Assessment System for Children-2nd edition) without the parents knowing about it. The parents were also not given a chance to answer the questions themselves—only the school district, which I believe makes the results not reliable. Also, make sure that your school district is evaluating your child in all areas of suspected disability.

**Advocacy tip: Any time that your school district asks to evaluate your child sooner than 3 years; be sure you find out why and be involved in determining what tests your child is given (remember you must gibe informed consent). Make sure that test names are written down—before you give written consent for the testing. Check and make sure that tests not agreed to are not included.

**Advocacy tip: Remember that when a child has behavior that interferes with their education, school districts must consider use of positive behavioral supports and plans. Schools are also required to use research based practices which is the use of positive behavioral supports and plans, and also teaching children appropriate behavior! Get your E book today and learn how to be actively involved in the process of developing positive behavioral supports!

I have heard from some parents that say that they do not worry so much about what tests are being used; because if the parent disagrees with the testing they have the right to an IEE at public expense! This is true, but I do try and get school districts to at least pick appropriate tests!

Disability Deception of the month

Posted by anonymous on April 30, 2009 at 6:05 PM Comments comments (0)

By JoAnn Collins  JoAnn@disabilitydeception.com

 

 

Special Education Person:

 “The child must fail before we provide special education services. The law does not allow us to give the child services if we predict they may need them in the future.” “We use screening to decide if a child is eligible for special education services. The law does not state that we must evaluate the child for special education eligibility.” “The child’s difficulties are related to his relationship with his mother, and he does not need services for that.”

 

All of these statements were told to me in a recent IEP meeting (trust me I couldn’t make these things up) by a special education person!  **Test your knowledge of special education law by answering these questions:

 

1. Does IDEA require that a child fail before they receive special education services?

2. Does IDEA require that a child still receive a free appropriate public education even if they are advancing from grade to grade?

3. Does IDEA require that a child that is “found” under Child Find be tested for special education eligibility?

4. Does IDEA require that a child transitioning from Early Intervention services be tested for eligibility?

5. Does IDEA allow blaming the parent as a way of not giving the child needed special education services?

 

Answers:

1. No—The Individuals with Disabilities Education Act does not require that a child fail before they receive special education services. The child must have a disability and have educational needs—that is it!

 

2. Yes—IDEA requires that even though a child is going from grade to grade they must be given a free appropriate public education.

 

3. Yes—IDEA 300.111 requires that all children with disabilities residing in the state, including children who are homeless, or are wards of the state and children with disabilities. . .who are in need of special education services are identified, located and evaluated. This language means that school districts must evaluate children who are “found” under child find.

 

Also under IDEA 300.301 states “Each public agency must conduct a full and individual initial evaluation . . . before the initial provision of special education and related services to a child with a disability under this part.”

 

4. I believe that it does, though I would check with your state law and make sure that this is required in your state. I found documents on the Illinois State Board of Education’s Website (where I live), that Illinois does require a comprehensive evaluation for children transitioning from Early Intervention, to determine special education eligibility.

 

5. While IDEA does not state that school districts cannot blame parents for their child’s difficulties; I believe that blaming the parent is a tactic used by many to most school districts! If the special education personnel can convince the parents that the child’s difficulties are their fault, then they can get away without giving the child needed special education services! Unless the parents stand up to the blaming and bullying!

 

How Did You Do? If you got all the answers right—awesome! If not—its okay keep learning and your child will benefit!

 

What did I do about all these lies? I filed an 8 page systemic complaint with the Illinois State Board of Education, for several violations of IDEA. A systemic complaint is not made in a child’s name but is made against the system (school district). I will let you know in future additions how the complaint worked out! The reason I filed the complaint is because I knew that if I was being lied to (the person knows that I know the law probably better than she does), other parents in the district were being lied to also!

 

funding information for special ed

Posted by Advocate on April 29, 2009 at 11:55 AM Comments comments (0)

Virginia's Application for FY '09 Part B Funds Under the Individuals with Disabilities Education Act (IDEA)

Public Comments Accepted

 

According to the General Education Provisions Act (GEPA), each state must make its application for IDEA Part B and Part C funds available to the public for 60 days, including a 30-day public comment period.

Below is a copy of Virginia’s application. The application consists of three sections:

Section I: Submission Statements

Section II: Assurances and Certifications

Section III: Description of Use of Funds

Virginia’s Application for FY '09 Part B Funds Under the

Individuals with Disabilities Education Act (IDEA) < http://www.doe.virginia.gov/VDOE/sess/news03.pdf >

Public comments may be made through April 11, 2009. Comments should be addressed to:

Catherine A. Pomfrey

Division of Special Education and Student Services

Virginia Department of Education

P.O. Box 2120

Richmond, Virginia 23218-2120

Comments may be submitted by e-mail to Cathy.Pomfrey@doe.virginia.gov.

Any amendments made to the application as a result of public comments will be forwarded to the Office of Special Education Programs, U.S. Department of Education.

http://www.doe.virginia.gov/VDOE/sess/news03.html

 

I know there is help, but where??

Posted by WhenHeSmiles on April 21, 2009 at 4:27 PM Comments comments (4)

I have 3 children and 2 step. They are all beautiful to my husband and I. Having 2 with ADD, 1 with ADHD and a teenager in full "emo" mode, our family blending has been... well.... trying at times. Our concern is our child with ADHD. I will call him "He Who Won't Stop Moving." He was diagnosed this past fall. We hurdled the school telling us to "place him in Pendleton" for he is only 7. We found adequate (I thought at the time) counseling. He is in treatment for his 99% off task behaviors,impulsiveness,difficulties with peers and noise-making he seems to be unaware of. The effects from the meds are awful, and they do not seem to work. His counselors staple statement is "Well, he seems happier now." WHAT?? His Rx counselor keeps dragging out the treatments even though they have not been effective. He is now on 3 medications a day and has already had his meds switched twice. The school is clearly taking the "it is not our duty to help" attitude.

I swing between anger, hopelessness and frustration behind our closed bedroom door at the end of each day. I hold back my tears for as long as I can keeping in mind our children pick up on our attitudes and outlooks. It hurts to see how our son not receiving proper help is affecting our entire family. It is not his fault. I research, make calls find a good doctor only to find out he is booked for the rest of 2009. I love my family. I keep moving forward. If anyone reading this blog has ANY advise or suggestions for parents that are new to this stuggle, PLEASE comment. I will be faithfully checking back in.

In Honor of Autism Awareness Month

Posted by Advocate on April 21, 2009 at 1:00 PM Comments comments (2)
Dealing with Anger and the System by Robert Naseef, Ph.D.



Alternative Choices, 319 Vine Street, Unit#110, Philadelphia , PA 19106 215-592-1333

RNaseef@alternative choices.com

How do you get rid of or channel the huge amount of anger you feel when you have to fight the "system" to get the services that your child needs? A mother of a child with special needs reached out to me saying that she felt like she could explode. "I get so drained and discouraged at all the fighting you must do to give your child what he deserves. It just isn't fair!"

It sure isn't fair. You have plenty to be angry about. Human hardship is not distributed equally, as Rabbi Harold Kushner wrote in When Bad Things Happen to Good People. I often recommend this little but profound book to the parents of children with special needs. Rabbi Kushner himself lost a child to a rare disease and knows all too well the struggles of parents. I remember how angry I was when my son was young. I had a hard time accepting that he would need special services for the rest of his life. I walked around with a chip on my shoulder - ready to rage and ready to cry.

If the universe is unfair, it sometimes seems reasonable to become embittered and chronically angry. But most parents don't want to go through life this way, so a new sense of what is fair is needed. Kushner speaks to this ages-old question about justice that appeared in the Bible. He reminds us that "Anguish and heartbreak may not be distributed evenly throughout the world, but they are distributed very widely. "

Sometimes even the children who are the closest to "normal" but still needing specialized services and programs can be very challenging. Certainly many of us have felt "drained and discouraged at all the fighting you must do to give your child what he deserves." It may help you to think about what other feelings you may have besides the anger. Fear? Sorrow? Worry? Guilt?

Anger evokes intense thoughts, feelings, and impulses. It often arises with the thought, "Why me? Why did this have to happen to me?" Losing something precious hurts and seems unfair. Parents want someone or something to blame. It might be themselves, each other, the doctor, toxic waste, vaccines, or the local school district.

Parents need loved ones and friends to allow them to experience anger, to cry, and sometimes even scream. Indeed what has happened is terribly painful. Trying to be patient by avoiding the pain only prolongs it. You can learn to watch your angry thoughts, feelings, impulses, and sensations and not what they tell you to do.

Parents are trying to make sense out of what has happened - "If we are decent people, how could this happen to us?" Why do we have to push and fight for what seems only fair? Services for children with disabilities while federally mandated have never been fully funded. "The squeaky wheel gets the grease." Parents routinely have to assert their child's rights to their "free and appropriate education." Unfortunately this tends to reinforce the anger and fan its flames. People often become convinced that anger is necessary.

If you believe that the universe is fundamentally unfair, you will remain chronically angry and embittered - walking around "with a chip on your shoulder." On the other hand, many parents have been able to use their anger initially to activate and energize themselves in the struggle to get the best possible services and education for their child's special needs. In this way parents can actually make the world behave more fairly toward their child.

It is possible and desirable to let go of the anger while staying active and assertive in the process.

The assertive parent thinks and acts in ways that back up the child's legitimate rights. An assertive parent can calmly and clearly express strong thoughts and feelings without putting down the thoughts and feelings of others. The assertive parent is both respectful and self-confident while requesting the services his or her child needs. Keeping in mind the inherent problem of the inadequately funded system of services is a key to defusing anger which often arises.

While these are general considerations, I strongly recommend that parents channel energy into organizations which advocate such as the Autism Society of America, or the ARC, or United Cerebral Palsy, etc. Connecting with other parents and professionals who are dedicated to getting the services our children need and deserve can be heart-warming and effective. Another choice is to channel energy into an advocacy organization that helps other families. Sometimes the best way to help yourself is to join in helping others.

In summary anger is part of the hurt. Gaining perspective and learning how to be assertive helps to heal the heartbreak. It takes time and support. If nothing else, our special children teach us patience - with them, with ourselves, and with the world around us.


In need of doctors

Posted by Tiffany on April 18, 2009 at 1:19 AM Comments comments (3)

My son who is 4 dx with PDD-NOS is currently seeing a psychiatrist and we are looking for a new one.  Does anyone have any  recommendations?  The one we see for his behavioral issues is not working out and I am desperate for a new one.  Also, we are looking for a psychologist who can work with his behavioral issues and would appreciate any input.

Professional Standard?

Posted by Kat on April 5, 2009 at 1:36 PM Comments comments (0)

My son is a 6th grader at Corporate Landing Middle School in Virginia Beach. He also happens to have autism.

 

We've had a year full of ups and downs. After a series of incidents where he was on the receiving end of some bullying (physical and verbal) we convened a meeting with the teachers and administration.

 

I was hoping that this meeting would mark a fresh start and things would improve. Instead, in the two weeks following the meeting, I had to pick him up from school not once but twice with injuries he sustained from unprovoked attacks. After the second attack, my son was disciplined because he "laid hands" on the other child (when he deflected the child's second run at him).

 

I made a lot of noise at that point. I appealed the disciplinary action (it was upheld and my son served the detention). I talked to the teachers, the administration, my advocate, and even made a statement at the Board of Education.

 

I asked for a meeting with the principal so she could tell me how she intended to keep my child safe at her school. She told me that she was going to include in the meeting the 8th grade Assistant Principal, who was also in charge of CLMS' Safe Schools Program. I welcomed that.

 

So imagine my surprise when a man in a black leather vest emblazoned with his affiliation with the Boneshaker's biker gang walked into our meeting and sat down. (Boneshaker's is a self-proclaimed saloon and biker bar in Virginia Beach.)

 

THIS was the guy in charge of Safe Schools? This guy who was wearing biker gear from a BAR to our meeting?

 

I was speechless. It took hours for me to wrap my brain around how unprofessional and disrespectful that was. Not only was it breaking at least two of the dress code regulations but it was just downright dismissive of my concerns for my son.

 

And, what kind of a mixed message does his attire send to the kids in his school? "Do as I say, not as I do" is not a great approach with middle schoolers. No wonder things are out of control at CLMS.

 

The fact that he didn't seem to know who my son was, and was not familiar with his case only made it worse.

 

How do I put the safety of my child in the hands of someone who so flagrantly ignores not only school regulations but standards of professional conduct?

 

Plaza Middle fails to educate

Posted by Jen on March 18, 2009 at 4:31 PM Comments comments (0)

I recently spoke at the school board meeting about my horrible experieces with Plaza Middle.

This is a draft of my speech.

I am here this evening to make you all aware of the gross negligence my son Tyler  has suffered while attending Plaza Middle School.  My son suffers from Tourette Syndrome, OCD, ADHD, and dysgraphia but the school has failed to acknowledge this.  Even after making a good faith effort in mediation, his special education services continued to be ignored.  Plaza failed to implement the services in the mediation agreement.  His case manager Mr. Felty failed in every aspect of his job responsibilities including scheduling IEP meetings within required timelines, drafting inappropriate IEP?s, failing to implement my son?s current stay put IEP services and goals.  The school has refused to assign my son a new case manager.  My son has also been repeatedly disciplined for behaviors related to his disability.  He has had security called on him for being ?off task?. He was in his desk quietly drawing instead of watching a movie.  He has also had security called on him for sleeping in class due to medication side effects.  He has 25+ discipline referrals since starting at Plaza, all of which relate to his disability or the schools failure to come up with an appropriate FBA & BIP.  His IEP, BIP, and FBA are poorly written and they fail to accurately describe my son or his disabilities.  My son?s written expression is on a first grade level and the only services he received for this was an alpha smart that was taken away from him as a disciplinary action.  The school administrators, special education personnel, and teachers seem uninterested in understanding Tyler?s disabilities.  I have even recently caught his art teacher gossiping about my son to other teachers in the lobby of the school while I was standing right there.  When I brought this issue up with the principal Mrs. Hoyle I was told it was a ?personal and private? matter and she would handle it but I couldn?t know the outcome.  Yet this teacher violated my son?s privacy.  Every time my son walks through those school doors, his self esteem and emotional health is compromised.  My son has been put on several different anxiety medications since starting at Plaza. He has had to have his antidepressant increased recently due to his traumatic experiences at Plaza.  I am forced to pay for advocates and attorneys to fight for services that my son is already entitled to.  I shouldn?t have to sacrifice my time and money to try and get the school system to do its job.  My son is very bright and should have the same access to education as any other child would have.  I will not let this school system bully and destroy my child.  I will do whatever needs to be done to protect my child and to make sure he has a chance to be educated and that he is given the tools he needs to be successful in life.

Boys Will Be Boys?

Posted by Kat on March 6, 2009 at 7:50 PM Comments comments (3)

School starts at 9. Got a call from the nurse at 9:05. Movie Boy was in the clinic with skin abrasions to elbows and knees, after being jumped by another student as he was entering the school. They had just unloaded busses and 1500 students were, all at once, proceeding into the building. The other student, Isaiah, got pushed into the bushes. Movie Boy and his friend Joey happened to be walking by, and Isaiah mistook them as being the ones that pushed him. I guess when you crowd 1500 students into a doorway, you get the Lord of Flies, really. Movie Boy didn?t know what hit him. He turned around, and the kid was making a second lunge at him, so he held up his hand to stop him. This is considered by school administration as having ?laid hands? on the other student. Isaiah then knocked him to his knees, and took off. Joey helped Movie Boy to the clinic, where he was treated and I was called. He and Joey filled out incident reports. The AP, Ms. B, let me know that she was going to let Movie Boy off with ?only a detention?. Is she insane? She said if I didn?t agree with her determination, I could write an appeal.

She asked for it. She?s got it. And so does the entire school board, the superintendent, and the principal.

Ms. B,

My autistic?son Movie Boy has been attacked twice in a very short term ? last week?when he sustained a head injury as a result of being hit by another student, and then again today when he received injuries to his knees and elbows when another boy pushed him to the ground. This on the heels of a string of verbal and physical incidents where he has been on the receiving end of bullying behavior. This has been documented?in numerous e-mails, meetings, and phone calls that included his?teachers, administration, and parents.?The bullying that he?has received?has also been corroborated by his peers.

After taking this abuse?for months, he is?traumatized by it. He now fears for his safety at school as do I.

In our phone conversation this morning, you stated that ?boys will be boys?. This is a dismissive and outdated ideology and one that does little to minimize the trend of bullying in our middle schools, or give me comfort that you recognize the seriousness of the situation. This?attitude is not conducive to a safe environment.

As you know, Movie Boy is a child with autism. Children with autism are more likely than typical children to be victimized by bullying. Unfortunately, the anecdotal evidence in Movie Boy?s experience this year speaks to this despite my efforts and his father?s efforts to effectively work with school personnel to manage it.

As you stated this morning, you have not read Movie Boy?s IEP. If you had, you would know that Movie Boy had communication and social deficits, and that we address these in a series of goals and objectives designed to help him succeed in middle school. We specifically address his inability to appropriately handle negative peer interactions. I am frustrated that he has not received specialized instruction as per his IEP regarding these social interactions and clearly the result of that is that, based on what happened this morning, Movie Boy?s skill in this area has not improved. However, this is through no fault of his own.

His inability to appropriately handle negative peer interactions is a documented deficit of his disability. Without appropriate and?systematic?instruction that takes into consideration his disability, your staff is leaving him completely unprepared to handle these incidents.

Despite the goals and objectives in his IEP, and despite repeated requests by both his father and myself, Movie Boy has been left to handle these attacks without instruction as is guaranteed him under IDEA and ADA.

Disciplinary action for Movie Boy is completely inappropriate. The responsibility for Movie Boy to respond appropriately to an incident such as occurred this morning is the burden of his case manager and IEP team, and therefore he should not be disciplined for this incident, but rather he should immediately receive instruction as to the appropriate method as to handle these attacks, if there is such a thing. I also ascertain that it is the responsibility of the school administration to keep him from being attacked, so he is not put in a position where he must respond. There is such a thing as ?fight or flight? response, and in children with autism this response is especially sensitive.

Movie Boy has done an ADMIRABLE job of taking and taking and taking the abuse that has been piled on him all year, waiting for the adults to improve the situation. He should be commended for his tolerance and patience thus far, and not disciplined because finally in March he may not have responded ?appropriately? to yet another attack. [And it is STILL unclear to me what the "appropriate" response should be.]

This is a shameful situation, to allow a child with a disability to be bullied all year and then point a finger at him.?What has been done to minimize the bullying? What has been done to meet the goals and objectives that are clearly outlined in Movie Boy?s? IEP?

Because if ?boys will be boys? is the best you can come up with, you are simply not protecting my child and have absolutely no insight as to how his disability affects him socially.

I also request that no interaction on this incident or any similar incidents occur without myself or his father present. This is a child with a communication deficit.

Thank you,

Kat


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